Pulmonary fibrosis patients, their families, and their care team can now connect through a platform jointly launched by the Pulmonary Fibrosis Foundation (PFF) and Responsum Health.
Responsum for PF, a personalized newsfeed, support resource, and data organizing tool for individuals living with pulmonary fibrosis (PF), is a free service that allows patients to easily access trusted, comprehensive, and understandable content.
Responsum for PF features a searchable database of over 500 article summaries, curated for the pulmonary fibrosis community. Patients can contact their healthcare providers directly from Responsum for PF to ask questions regarding articles or news featured on the platform, which will aid in shared decision making. Responsum for PF also provides useful health data tools including a shareable Patient One-Sheet and Patient Services, Inc.’s patient assistance program.
“Our goal is to ensure that every patient has access to the most accurate information available so that they can make informed decisions about their treatment and their life choices,” said Gregory P. Cosgrove, MD, PFF Chief Medical Officer. “Responsum for PF minimizes the risk that the information patients find online is outdated, inaccurate or misleading.”
Responsum for PF was built by a team of patient engagement experts and based on over four years of patient interviews and input.
“While the Internet offers the promise of unfettered access to massive amounts of information, patients can easily find themselves overwhelmed by too much or underserved by inaccurate, inappropriate or overly complex content. Responsum solves that problem,” said Andrew M. Rosenberg, Founder and CEO of Responsum Health. “We all agree that a better informed patient makes for better outcomes, and that is our number one goal.”
More than 200,000 Americans are living with pulmonary fibrosis, a deadly and complex disease which causes progressive scarring in the lungs. Fifty thousand new cases are diagnosed each year. There is no known cure.